Scoliosis Packet: Appendices: Resource List

Scoliosis
a yet to be publication of the National Women's Health Network

Appendices

Resource List

Below are listed organizations, websites, books and videos that offer support for individuals with scoliosis and for their family and friends. A brief description is provided when possible.

ORGANIZATIONS

Scoliosis Research Society
6300 N. River Rd. Suite 727
Rosemont, IL 60018-4226
847 823 0536
email: Goulding@aaos.org
website: http://srs.org/

This is a professional organization for orthopedists interested in scoliosis. They can provide pamphlets on the diagnosis and treatment of scoliosis, price information, and referrals to physicians.

The Scoliosis Association
P.O. Box 811705
Boca Raton, FL 33481-1705

This association publishes a quarterly newsletter and pamphlets. Single copies of pamphlets are free with a self-addressed stamped envelope. Information on local chapters of the Association and support groups are also provided.

The National Scoliosis Foundation
5 Cabot Place
Stoughton, MA 02072
(617) 341-6333 (Voice)
(617) 341-8333 (Fax)
800-NSF-MYBACK

This is a non-profit, voluntary organization that provides pamphlets, a newsletter, and other materials on childhood and adult scoliosis. They also can provide support group information and state lists of physicians who specialize in scoliosis.

Yoga Research Center
PO Box 1386
Lower Lake, CA 95457
Phone: (707) 928-9898
Fax: (707) 928-4738

American Meditation Institute
PO Box 430
Averill Park, NY 12018
Phone: (518) 674-8714

Copes Foundation
8108 Picardy
Baton Rouge, LA 70809
Email: a.copes@worldnet.att.net
Website: www.scoliosis.com

Feldenkrais Guild of North America (FGNA)
524 Ellsworth St. SW
PO Box 489
Albany OR 97321
Phone: (800) 775-2118, (541) 926-0981
Fax: (541) 926-0572
Email: feldngld@peak.org

BOOKS/PUBLICATIONS

Many of these books can be found at your local library or bookstore.

Just like Always
by Elizabeth-Ann Sachs, 1981 ($9.95)
Fictional story about friendship and scoliosis. Note: surgical procedures are not up-to-date

Deenie
by Judy Blume
Coming of age story of a girl with scoliosis.

The AMA book of Back Care
compiled by American Medical Association ($12.95)

Dressing your Curves
Newsletter written by volunteers at the National Scoliosis Foundation about what clothes are the best at accommodating a brace and/or scoliotic curve. For more information, contact

National Scoliosis Foundation
5 Cabot Place
Stoughton, MA 02072
(800) 673-6922
(617) 341-6333
(617) 341-8333 (FAX)

WEBSITES

Not really sure how to find these web sites? The "Searching the Internet" section will give a brief introduction to the Internet, a few ways to get connected to the Internet, and how to find web sites once you’re there.

Scoliosis Mailing List
http://www.ai.mit.edu/scoliosis/scoliosis.html

Find A Scoliosis Specialist in Your Area
http://www.scoliosis.org

WebSite for Chronic Pain Sufferers http://members.tripod.com/~cpsc/body.html

Feldenkrais Websites
http://www.feldenkrais.com/feldenwhat.html
http://www.feldenkrais.comm/faq.html#benefits
http://www.feldenkrais.dom/processoffi.html

Copes Foundation
www.scoliosis.com

Tai Chi web site
http://www.taichi-arts.com/wis_tcc.htm

Yoga Web Sites
http://www.yogasite.com/research1html#Meditation
http://www.yogasite.com/yogargstable.htm

VIDEOS

Taking the Mystery out of Spinal Deformities (20 min)
VHS video answering questions most often asked by adults with scoliosis, and parents of children with scoliosis. To order, send $17.95 + $2.00 (CA residents add sales tax) to

Children’s Hospital of Los Angeles
Mail Stop #69
Division of Orthopaedics
4650 Sunset Blvd
Los Angeles, CA 90027

You are not Alone (25 min)
VHS video presenting two women’s experiences, recovery and improved lifestyle after surgery. To order send $28.00 to

Minnesota Spine Center
606 24th Avenue, Ste. 606
Minneapolis, MN 55454