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Adult Scoliosis
What is Adult Scoliosis?
Adult Scoliosis describes the condition of scoliosis in individuals over age 21. Most people do not suddenly develop scoliosis, but have carried over their idiopathic ("unknown cause") scoliosis from adolescence. There are also people who develop a scoliotic curve from a traumatic injury, fracture, osteoporosis (a degenerative bone disease) or another neuromuscular (nerve and muscle) disease.
It used to be believed that idiopathic scoliosis came to a screeching halt when a person stopped growing at a rapid rate (at the end of teenage years). Nothing is further from the truth! In a significant number of adults, scoliosis is progressive, usually causing distressing symptoms of pain and disability as they grow older.
How does your curve progress as an adult?
In approximately 30% of adults who have scoliosis, a mild progression of their curve will probably occur. But of these, only 10% have significant progression of their curve as adults. Mild progression may be 1 degree per year. Significant progression is described as 5 degrees or more per year. Scoliosis is most likely to progress during adult life in patients that have a curve pattern which throws the trunk out of balance, (thoracic, thoracolumbar, or lumbar curve), those with poor muscle tone, and especially in women who have become sedentary and overweight.
What are some signs that your curve is progressing?
Several factors may indicate progression. These include: appearance, pain, or pulmonary (lung) changes. An individual may notice their curve is progressing from changes in the way their clothes fit. Many people describe a change in their waist line and shoulders. In some instances individuals feel they are leaning because of an increase in their curve and a change in balance. Among those individuals with progressive curves in their thoracic (at chest level) spine, shortness of breath or frequent chest colds are noted with curves greater than 65 degrees.
Unlike adolescent scoliosis, which is typically painless, pain is the most common complaint of adult patients. It is important to determine whether the presence of a scoliotic curve and a complaint of pain are linked. Sources of pain outside the curve need to be excluded. When pain does arise in association with scoliosis, the cause may be due to muscle, vertebral disc, nerve root problems. Increasing amounts of back pain may be a symptom of increasing curve progression.
What treatment is available for adults with scoliosis?
Treatment for adults with scoliosis varies. The majority of the population requires non-operative treatment. Muscle fatigue (tiredness) and strain are often relieved through the use of nonsteroidal antiinflammatory drugs (also called NSAIDs) such as ibuprofen (Tylenol) or aspirin. When these drugs are coupled with braces to immobilize the curved area, they are often effective in providing relief from pain. It is recommended that anyone with a spinal condition exercise regularly, maintain an ideal weight, avoid smoking and avoid a sedentary lifestyle. Individuals with curves greater than 50 degrees may want to consult an orthopedic spine surgeon, who will discuss the option of surgery with them. Because surgery in adults can carry more complications than surgery done on younger people, individuals should weigh their pain and curve progression against this increased risk. during their entire adult life. If curve progression is noted, treatment should begin as soon as possible.
Even if your curves isnt progressing at a rate faster than one degree per year, it is a good idea for adults with scoliosis to have a physical examination at least twice a year.
Scoliosis and Sexuality
Sexual expression is one aspect of human health that scoliosis can have an impact on. The curvature of the spine, together with the pain that sometimes accompanies the curve, can sometimes make sexual activity more physically difficult. Also, bone fusion surgery makes a person less flexible, which takes getting used to, including in the context of sexual activity. Scoliosis can also have an impact on a persons body image and their self-esteem. If a person feels embarrassed about the way they look, or they are worried that their partner is upset by their appearance, this makes it more difficult to relax and enjoy sexual activity.
In a study of 46 women between the ages of 21 and 34, the women who had been treated for scoliosis by bracing or surgery reported greater overall sexual satisfaction than the women who did not have scoliosis. The women with scoliosis also reported a greater capacity for intimacy than the other women. So scoliosis is not necessarily sexually debilitating at all. (Clayson, Luz-Alterman, Cataletto, and Levine, 1987)
One woman writes:
I have a few close friends at work who are my best support system. For
me, the true friends who called or came by after my last surgery were
greatly appreciated. I have a friend who is going to ride home with me
after this next surgery (a 4 hr drive), and that is real friendship.
The least helpful has been my boyfriend's (unintentionally hurtful?)
comments about my altered appearance, mobility, etc. He has tried to be
supportive, and will be there for my next surgery, but has difficulty
accepting me inactive, overweight, in pain, and unable to do the things I
used to do.
If you are a woman with scoliosis, chances are that you are aware of your limits, but you want a satisfying level of sexual function. Health professionals should be able to help you, but this can be challenging because you might be reluctant to bring it up because sex is usually a private matter. Also, many health professionals are not well prepared to help you. However, some are prepared, and they should be able to help you in the following ways:
- Provide you with information about how your case of scoliosis may or may not affect your sex life.
- Help you to work through feelings of loss, anxiety and lowered self esteem that may arise.
- Offer information about anatomy, physiology and instruction in sexual techniques, including comfortable sexual positions and relaxation techniques that other women with scoliosis have found helpful.
- Talk about ways in which you can discuss these matters with your partner if you want to.
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